Tuesday, January 11, 2011

Yes!

Tuesday.

Tuesday night, we are sitting here at Ronald McDonald House in a land of snow. Between our beds is a RMDH pack and play, and in it is a very full and sleepy Flynn.

I'm not sure what miracle put him in our hands. There was some debate on whether they wanted to let him go. But in the end they looked at the total growth curve, not the weight changes just after surgery, and decided it would be ok.

We walked out of the NICU, and we had our son, and our daughter, and all of Flynn's little things, and it is as if it was always meant to be. I do not know what to think, except that tomorrow is another day, and every day after that will be another day.

The journey is not over. It is never over. It has just begun. But it could have been so much shorter, and so much worse. We are truly fortunate. We are truly lucky. We are truly blessed.

I can reach out and touch him. And we are going home.

Waiting no longer. He is with us.

Monday, January 10, 2011

No.

Not tuesday. He lost weight today.

Car seat test passed

That's when they strap him into his seat and let him sit the and see if he desaturates his oxygen. For the record he does not like his car seat, but he passed the test, which was the important thing. I am hoping that a change of scenery plus the hum of the car will encourage him to be content or simply sleep.

this morning I mixed his food and fed him and then walked him around the halls for over an hour. Bonnie is over there now learning how to care for the g-tube and the dressing. Later we will go over, sparrow and I, and see what else there is to do. Cor now, I have the car packed and ready to go against the threat of snow.

Very, very, very close we are . . .

Sunday, January 9, 2011

Tuesday?

So Dr Ali says, as in "Probably not Monday." but still I hold my breath. So close, it could still be so far.

Thursday, January 6, 2011

Hallelujah!

Next Tuesday, at the latest, Flynn is coming home! Details to come.

Wednesday, January 5, 2011

. . . and done

The surgery went well. Evidently last night he pulled his feeding tube out just like he pulled out his vent a day early as well, and he was an angry little boy this morning, hungry. Surgery got started late so Bonnie walked him around and giggled him and made him happy, Something that would have enraged an infant Sparrow. But everything seems OK. He will not get to eat for another day or so, so he will be one hungry little boy, but he will have an IV.

Procedure this morning

I don't want to call it another operation, but I suppose it is.

Sometime around now.

I miss everyone terribly. I am so tired. I know Bonnie is as well.

Tuesday, January 4, 2011

On a walk

Flynn got to go or a three minute walk around the NICU yesterday, with Bonnie and a nurse. He is down to one dose of methadone every 24 hours now. Otherwise he is doing well. He was awake all morning and had his baby aerobics and actually pushed himself up a bit when laying on his tummy! The therapist was impressed. More of a two-month old kind of thing, and yesterday he was six weeks old.

Tomorrow is his g-tube placement and fundoscopy. I that goes well and he recovers rapidly, we are so, so close to getting him out of there.