It has been a long time since I posted and do much has happened. Flynn is no longer on a feeding tube -- he's taken nothing by tube since I think October of last year. It feels like a lifetime ago. His g-tube fell out in January but it wasn't until just a couple of weeks ago that we had it surgically closed at Children's Mercy. We ha hoped it would close by itself given time but it was just not happening and bothered him terribly.
He is far friskier and weighs more although he is a little boy. He doesn't walk yet but cruises agilely. We hope that comes soon.
Sadly we hear that the Fetal Care Institute is no longer doing the gel occlusion although that's hearsay from the net right now. We feel do fortunate that it worked for him and still can't believe it did. I hope the Institute is working on something else,
