That's when they strap him into his seat and let him sit the and see if he desaturates his oxygen. For the record he does not like his car seat, but he passed the test, which was the important thing. I am hoping that a change of scenery plus the hum of the car will encourage him to be content or simply sleep.
this morning I mixed his food and fed him and then walked him around the halls for over an hour. Bonnie is over there now learning how to care for the g-tube and the dressing. Later we will go over, sparrow and I, and see what else there is to do. Cor now, I have the car packed and ready to go against the threat of snow.
Very, very, very close we are . . .
Monday, January 10, 2011
Sunday, January 9, 2011
Tuesday?
So Dr Ali says, as in "Probably not Monday." but still I hold my breath. So close, it could still be so far.
Thursday, January 6, 2011
Wednesday, January 5, 2011
. . . and done
The surgery went well. Evidently last night he pulled his feeding tube out just like he pulled out his vent a day early as well, and he was an angry little boy this morning, hungry. Surgery got started late so Bonnie walked him around and giggled him and made him happy, Something that would have enraged an infant Sparrow. But everything seems OK. He will not get to eat for another day or so, so he will be one hungry little boy, but he will have an IV.
Procedure this morning
I don't want to call it another operation, but I suppose it is.
Sometime around now.
I miss everyone terribly. I am so tired. I know Bonnie is as well.
Sometime around now.
I miss everyone terribly. I am so tired. I know Bonnie is as well.
Tuesday, January 4, 2011
On a walk
Flynn got to go or a three minute walk around the NICU yesterday, with Bonnie and a nurse. He is down to one dose of methadone every 24 hours now. Otherwise he is doing well. He was awake all morning and had his baby aerobics and actually pushed himself up a bit when laying on his tummy! The therapist was impressed. More of a two-month old kind of thing, and yesterday he was six weeks old.
Tomorrow is his g-tube placement and fundoscopy. I that goes well and he recovers rapidly, we are so, so close to getting him out of there.
Tomorrow is his g-tube placement and fundoscopy. I that goes well and he recovers rapidly, we are so, so close to getting him out of there.
Friday, December 31, 2010
G-Tube and Fundoscopy
Yesterday evening they did the barium test on his acid reflux, and a thin wisp of barium did indeed trail up out of his stomach, clearly visible on the fluoroscope. "Even Dad saw it," the pediatric nurse-practitioner said. So they are going ahead with the fundoscopy and the G-tube insertion. After a week, likely, of recovery, then maybe he can come home.
Maybe, maybe, maybe! I fed him today, and he was in such discomfort, he did not want to it. It hurts to see him that way. It hurts to not have him at home. It hurts not to be there.
Maybe, maybe, maybe! I fed him today, and he was in such discomfort, he did not want to it. It hurts to see him that way. It hurts to not have him at home. It hurts not to be there.
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